Living with the ebb and flow of MG
Each day we get up, point our finger into the wind to see what direction it’s blowing, and then move forward.
Tom Bartlett
I was diagnosed with generalized myasthenia gravis (MG) in August 2019. Prior to my diagnosis, I was the head of global sales and business development for a life science consulting firm. For nearly 10 years, my goal was to help innovative pharmaceutical companies advance their research and bring new therapeutics to market. Unfortunately, I was unable to perform at the highest level after my diagnosis and resigned. I was always hopeful to work with a company who would bring a new therapeutic to market for me. Even though I live with generalized MG, I consider myself lucky. I have wonderful children, David and Stephanie, and a sturdy support system with family and friends. Now, I work as a patient advocate utilizing my background in technology and science to help the rare disease patient community.
