A myasthenic crisis won’t happen to all people living with myasthenia gravis (MG), but it’s important to be prepared just in case. These tips can help you recognize the signs and get care quickly in an emergency.
How to know if an MG crisis is developing
A myasthenic crisis is a life-threatening complication that eventually occurs in 15% to 20% of people living with MG. Without urgent treatment, it can lead to respiratory failure.
In an MG crisis, the upper airway and respiratory muscles are severely weakened, and can become too weak to move air in and out of the lungs. The situation can rapidly become acute, requiring medical intervention such as intravenous immunoglobin or mechanical ventilation.
If your ability to breathe becomes worse over a period of days or even weeks, it could be the onset of an MG crisis. It is advisable to inform your healthcare team immediately.
Be prepared for an MG crisis
The risk of developing an MG crisis will be flagged by your healthcare team following diagnosis to emphasize the importance of being prepared for this medical emergency. While you may or may not encounter an MG crisis in your life, there are some steps you can take to prepare yourself for the best possible outcomes.
Avoid symptom triggers
Symptom triggers vary from person to person; recognizing them and avoiding them can prevent a serious medical emergency. Some common triggers for a myasthenic crisis include sleep deprivation, extreme temperatures and emotional stress.
However, the most common cause of a myasthenic crisis is a trigger that might be harder to avoid: infections. Take sensible precautions where you can, like wearing a mask and washing your hands often during cold and flu season.
Wear a medical ID bracelet
In the case of a medical emergency, your medical ID bracelet will provide your name, medical condition and emergency contact. It may also be supported by a wallet card with further details. In an emergency, this information can help first responders provide the right care more quickly.
Put together an emergency pack
It may sound dramatic, but your emergency pack could save your life if you experience the onset of an MG crisis away from home.
Your emergency pack should include a one-page document that summarizes your key medical information — like your condition, treatment, medications and allergies. Like a medical ID bracelet, this document is designed give first responders and medical personnel who may need to provide urgent medical treatment the information they need if you are unable to communicate.
Your emergency pack should also include items you may need if you are suddenly admitted to the hospital, such as your medications, a phone charger and something comfortable to wear.
Consider telling family, friends and coworkers
You may want to tell trusted colleagues and friends about the potential for an MG crisis so they can help you get care in an emergency situation. Sharing the signs to be aware of or telling them where you keep your emergency bag will let them help you in a crisis. You may even want to give them a copy of your medical information, just in case.
Sign up here to get the latest news, perspectives, and information about MG sent directly to your inbox. Registration is free and only takes a minute.
